Room to grow: Run raising funds for Spruce Grove girl diagnosed with genetic muscle disease

Like most 14-year-olds, Pyper Whitecotton is looking for some independence. The small mobile home in Spruce Grove she shares with her mom, Heather Forsyth, is getting a little too cramped for the duo. Pyper was diagnosed with Spinal Muscular Atrophy…

Life-changing drug Spinraza still not covered for many Canadians with spinal muscular atrophy

For several hundred Canadians with spinal muscular atrophy (SMA), Spinraza is a drug that means the difference between life and a slow, debilitating death. But in many parts of Canada, the incredibly expensive drug is not covered by provincial drug…

Woman granted ‘miracle drug’ coverage after pleas in media, at Queen’s Park

A 21-year-old woman with spinal muscular atrophy (SMA) has been granted eight months’ worth of provincial health coverage for an expensive “miracle drug”, her family says. The news comes less than one month after their pleas for coverage were taken…

Families of patients with SMA meet with Ontario health minister, hope ‘miracle drug’ will get funded

Families of patients with spinal muscular atrophy (SMA) say they have new hope that the “miracle drug” Spinraza will soon be available to all SMA patients in Ontario after a face-to-face meeting with Health Minister Christine Elliott. “She said she’s…